Pathways is a life-changing and transformational program for children and adults with Down Syndrome.

All people have the right to live, love, work, play, and pursue their life aspirations in their community.

Overview

All services will be offered virtually at this time. Individual and small group services may be offered on-site at the DSG Lifespan Campus based on therapist discretion, current community guidelines, DSG guidelines, and advice from local health officials.

Pathways offers interdisciplinary, family-centered therapeutic services to promote long-term success to people with Down syndrome. The Pathways team includes an occupational therapist (OT), a speech-language pathologist (SLP), and a Board Certified Behavior Analyst (BCBA). The therapy team works by bringing together their unique yet complementary perspectives to help support skill acquisition across the home and community. Pathways utilizes the Down Syndrome Guild’s Lifespan Framework to guide goals and interventions across services.

From in-depth comprehensive programming designed to provide education and strategies to caregivers, to direct programming designed to address a specific area of need, Pathways offers a variety of services to meet the needs of people with Down syndrome and their families.  The Pathways team also works with other DSG staff to help generalize skills into group programming and beyond.

At DSG, the term “self-advocates” is used to refer to people with Down syndrome. This is intentional because we want our participants to ultimately find their voice, have their own dreams, and make their own choices.

If you or your loved one has a diagnosis of Down syndrome, Pathways has something to offer. Services include a range from working with self-advocates to supporting caregivers. Working from a strength-based perspective, Pathways does not require standardized assessment scores to determine eligibility. The Pathways team believes that everyone is a lifelong learner and deserves unlimited opportunities for growth. Pathways services are designed to meet the unique needs of each family.

To find which program meets your family’s needs, please see the program descriptions below.  After reviewing the information provided, please feel free to contact Megan DeBoom, Director of Therapeutic Services, for additional information.

After completing the Pathways enrollment process, your family gains access to the Pathways portal for life! This tool is a one-stop, online tool for scheduling Pathways appointments, communicating with the Pathways team, storing Pathways documentation, and accessing individualized therapeutic resources and materials. Your family is encouraged to upload IEPs, medical reports, videos, and/or photos that help the Pathways team further address your family’s unique priorities and needs.

Pathways clinic hours are comparable to pediatrician hours: Standard weekday business with occasional evening clinic hours, and this may require missing school hours for appointments. Scheduling can be done months in advance to secure preferred dates. Upon request, a letter of Pathways attendance can be provided to the school.

All services are provided on-site in the Pathways Clinic in the Down Syndrome Guild unless stated otherwise by the lead therapist: 5960 Dearborn, Mission, KS 66202.

– Review all of the content in this LEARN MORE section of this website

– Express interest or direct questions to Megan Deboom, Director of Therapeutic Services, if you are not ready to enroll.

Submit online Pathways Enrollment Form here or click on ENROLL on the homepage

– Megan DeBoom, Director of Therapeutic Services, will contact you to discuss your enrollment and to move forward in the process of receiving Pathways services.

2021 Pathways Service Menu

Caregiver Targeted Services

Behavior Consulting focuses on providing the foundational knowledge that empowers caregivers to address behavioral challenges. The behavior analyst virtually meets with caregivers to complete an in-depth interview to determine needs. Utilizing a functional approach to behavior, the behavior analyst will work with caregivers to provide education and create individualized strategies and supports to promote appropriate behavior for your self-advocate across environments. Synchronous and/or asynchronous video recordings may be utilized to allow the behavior analyst to provide feedback on challenging, everyday situations.

On-Demand Consulting is for caregivers who need targeted support but for whom on-going sessions may not be necessary or feasible. Using Zoom, a member of the therapy team will provide education, resources, or strategies to address a specific need in the home and/or community.  Examples include a member of the therapy team providing training to non-household caregivers or working with a member of the therapy team to create strategies for a specific challenge.

If additional support is deemed necessary, the therapy team will work with all stakeholders to determine next steps including but not limited to internal referrals or community referrals.

Visual Supports focuses on supporting caregivers in creating and preparing visuals for use in the home and community. Examples of visuals include visual schedules, visual expectations, token boards, break cards, emotion/coping strategies, video modeling, social stories, consequence maps, and choice boards. Visuals are important for many reasons such as promoting skill building, generalization and use of consistent language across environments.

Long-term Planning provides caregivers a guide through long-term planning tasks and exercises to better prepare for the transition towards adulthood. These tasks may include contacting the CDDO to get on a waiting list for ID/DD services, brainstorming vocational and volunteer opportunities, developing a transition dream team, or defining action steps towards long-term goals.

Self-Advocate Targeted Services

Skill building focuses on providing direct therapy services in a 1:1 format. Based on your family’s priority, an informal observation will be used to evaluate. The lead therapist will create goal(s) and provide individualized interventions that address your self-advocate’s needs. In addition, caregivers will be provided strategies to embed into your family’s daily routine to promote generalization of skills across the home and community.

Social Engagement (targeted for teenagers and adults)

Social Engagement focuses on providing a supported environment where self-advocates can learn and practice social skills. Utilizing group instruction, a member of the therapy team meets with self-advocates of similar ages and skills to work on initiating conversations, conversational turn-taking, staying on topic, understanding hidden rules, and so much more.

Ready, Set, Regulate (targeted for elementary aged children)

Ready, Set, Regulate provides a supported environment where self-advocates can focus on appropriately participating in small group programming, identifying and expressing emotions, and developing healthy emotional regulation strategies. The Pathways team will utilize an interdisciplinary approach to ensure that every self-advocate has the tools to reach his/her highest potential.

Playgroups – COMING SOON (targeted for toddlers, preschoolers, and kindergarteners)

Playgroups are designed to promote the development and learning of children with Down syndrome, ages 0-6 years. Early intervention is a critical period as it lays the foundation for outcomes across the lifespan. Groups will be play-based, as children learn through play and exploration, and developed by an interdisciplinary team.

All Access (Caregiver and Self-Advocate Targeted Services)

All Access is the most supportive service and includes highly individualized education, strategies, and interventions. At a minimum, your family will have 2 sessions each month.  One session will be focused on skill building and the other session will be focused on caregiver education and support.  Upon request, All Access families can have contact with each member of the Pathways team.

This service requires a year commitment. In order to provide targeted interventions and build momentum, the Pathways team will review data with your family on a quarterly to ensure progress towards and continued relevance of selected goals.

All Access truly means all access. Your self-advocate will be able to participate in specialized group programming at no additional cost.  Your family will also have access to long-term planning and visual supports.  The therapy team will work with educational programming staff to promote self-advocate success in large group formats.